The Scleroderma Society of Canada, together with the Scleroderma Society of Ontario, is pleased to announce that the 2013 Scleroderma Canada Congress, themed: “Whole-patient care - Treating the patient not the disease.” was a resounding success!
A capacity crowd showed up for the pre-Congress “Café Scientifique” at the AGH Design Annex themed: “Facing Rare Disorders in Canada” Thursday evening. On tap were exhibits from Scleroderma Framed and Changing Faces. We also heard from Maureen Mayes, James Partridge, Joep Welling and Maureen Sauvé about the emotional, social and psychological challenges of having a condition with visible differences.
As a part of our tireless effort to raise awareness for Scleroderma, an accredited clinical education session covering Systemic Sclerosis, Raynauds Syndrome and Lupus presented by McMaster University Health Sciences and the Hamilton Scleroderma Group was held on Friday morning. There were twenty-two medical professionals, students and trainees in attendance to broaden their understanding of these complex diseases.
The 2013 Scleroderma Canada Congress was the largest pan-Canadian gathering of patients, families, clinicians, researchers and health system decision-makers in Canada to date. Hundreds of participants came from all regions of Canada, the U.S., France, the Netherlands and the U,K. As well, the event drew participants from government, education and research institutions, professional associations, and industry.
We were very fortunate this year to have members of the Scleroderma Patient centered Initiatives Network (SPIN) available to speak. A very special “thank you” to Brett Thombs, Linda Kwakkenbos and all of the SPIN members that made this possible. Without them, the congress most certainly would not have been the inspiring and educational event that it was.
The Scleroderma Society would like to thank all of the speakers, sponsors, members of government, board members, staff, volunteers, support group leaders, patients, friends and family that helped to make the 2013 Scleroderma Canada Congress in Hamilton a reality. This was not a victory won by one person, or even a small group of people, but by all of us.
Due to popular demand, this site is being updated with a section labeled “Congress Presentations.” Here, you can download copies of presentations given by your favorite speakers from the Congress. Check back regularly, we will be adding more presentations as we receive them.
Be sure to check out the photo gallery and we hope to see you next year in Winnipeg!
Registration is now open for the15th Annual Scleroderma Conference happening in Winnipeg, Manitoba September 18th & 19th, 2014!
*Register by August 1st, 2014 to qualify for the early bird registration fee and a special gift.
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